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Sickle Cell Statistics & Figures*

There are no actual national or local figures to represent the number of people who suffer from Sickle Cell and Thalassaemia in the UK . However carrier frequencies can be used with census records to calculate estimates. We would like you to note that these figures are only minimums.

National Carrier Frequencies of Sickle Cell & Thalassaemia in the UK

In Britain 1 in every 300 people are considered at risk of having Sickle Cell Anaemia.

In Britain 1 in 10 people are considered ‘at risk' of having the Sickle Cell Trait.

(figures from ‘Sickle Cell in Merton' research report, 1996)

In Britain 1 in 100 people are considered ‘at risk' of having the Thalassaemia Trait.

As an organisation supporting these suffers we have no doubt that these figures do not do justice to the actual number of people who exist and need support .

Merton Sickle Cell & Thalassaemia Figures

In accordance to the 2001 Census, these are the population figures for the London Borough of Merton residents. 14,626 Black and/or Black British residents and 20,807 Asian and/or Asian British residents live in the London Borough of Merton.

Using the above carrier frequencies and census figures, it could be construed that only 49 sufferers of Sickle Cell Anaemia are living in Merton. We believe this to be inaccurate. To demonstrate our claim we can only provide you with our own personal membership figures as a comparison to the estimates.

We have 120 families registered with our group, equalling over 450 individuals.

Concerns should be raised regarding the level of service provision in the public sector for sufferers and their carers, as the numbers we are depending on are so questionable.

MSCTG can estimate that there are 1,462 Black people living in Merton who are carriers of Sickle Cell trait and 208 Asian people who are carriers of Thalassaemia trait. In Merton alone there are a total of 1,670 people with the trait's.

We have calculated that there is a 17% increase in demand for the services and membership of MSCTG every year . This figure is supported by national estimates determined by demand on similar voluntary organisations throughout the UK .

During the last 12 months December 2003 to December 2004 MSCTG had 29 new families join The Group. 476 members visited our office for support, advice and information and we made 30 visits to hospitals to support our members during a crisis of a child or adult.

There are “Well over 15,000 sufferers of Sickle Cell Nationwide”, this figure is from ‘ The Politics of Sickle Cell and Thalassaemia' , (Elizabeth Anionwu and Karl Atkin 2001). Even this publication is now 3 years old.

* all figures are estimates only

 

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